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Lynn Hudoba: Old MacDonald Bought the Farm

Explaining death to a child is never easy, but especially fraught for parents of children with autism.

 

Last fall I wrote about parenting advice columns and how foreign and inapplicable the content was for special needs parents. But even when advice is supposedly specifically tailored to parents of children with autism, it can be laughably off-base.

Take this article about explaining the death of a loved one to a child with autism. This one hit close to home because my father died about a year and a half ago. Also just recently my daughter’s BFF Grace, who is also on the autism spectrum, experienced death for the first time.

In her case, it was her elderly neighbor Harry whom she barely had any contact with except for when he chased her away from his bird bath. But that didn’t stop her from becoming completely obsessed with his sudden disappearance. I forwarded this article to Grace’s mother as soon as I saw it, knowing that she would get a big kick out of the advice.

The article reminds us that children with autism can be very literal, so recommends that you stick to the facts and just lay it right out there: “He had a heart attack. That means his heart did not work anymore." The author recommends this directly after acknowledging that autistic children are not unemotional robots, but actually experience the full gamut of emotions just like anyone else. Anyone see a problem with this? Here’s how it played out for our friends:

Grace: “Why did Harry die?”

Mom: “Well, he was old and when you get old sometimes your heart stops working.”

Grace: “But wasn’t he in the hospital?”

Mom: “Yes, they tried to help him there. They tried to keep his heart working, but they couldn’t.”

Grace: “How did they try to keep his heart working at the hospital?”

Mom: “They gave him medicine and they put him on some machines, but then they decided to turn the machines off.”

Grace: “Why did they shut the machines off? Did the hospital kill him? Does everyone who goes to the hospital die? Will I die if I go to the hospital?”

Grace is now mortally afraid of hospitals, thinks her mom is going to die if she so much as clears her throat, is freaked out by colloquialisms like “broken-hearted” and is reconsidering her enthusiasm for having birthdays and getting older.

The next piece of advice is to incorporate your religious beliefs into any discussion about death: “Don't be afraid to explain the concept of heaven, just use clear and concise language.” Yeah, don’t be afraid. Just be clear and concise. About heaven.

Grace’s mom knew her daughter well enough not to go that route, but Harry’s well-meaning widow weakened under a bombardment of questions from Grace and told her that Harry was very happy and in a better place in heaven. Grace then skipped on home, thrilled at the thought that she’ll surely be running into old Harry when she goes Disneyworld over spring break.

This led her mother into a discussion of the human body as a vessel for the spirit and soul of a person—with the body being buried but the spirit rising to heaven—and then quickly regretting it and wishing she could scrub everything she’d just said from her daughter’s brain when she started screaming about not wanting to ever be in a box in the ground.

Mom (exhausted): “The next time you see Mary, just say that you’re sorry about Harry and leave it at that.”

Grace: “Why, was it my fault?”

Mom: *facedesks herself unconscious*

I know that parents of typically developing children might say that explaining death to their kids is just as difficult, and that they might very well react in a similar fashion. And while it is certainly true that death is one of the hardest concepts for anyone to grasp, typical children are probably not as likely to obsess over it to the degree of a child with autism, and far less likely to approach random senior citizens in the park, fondle the chicken skin under their upper arms and ask them if they’re going to die soon.

Related Topics: Autism, Death, Parenting, and Special Needs

Susan Carroll

7:13 am on Tuesday, February 21, 2012

First, sorry about your dad. Second, I will not take it personally if Audrey ever fondles my chicken skin. Third, I looked for the word "fraught" but did not find it. Is it in there?

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Lynn Hudoba

9:45 am on Tuesday, February 21, 2012

It's in the subtitle thingy! You are fraughting me out right now.

Cathy

9:59 am on Tuesday, February 21, 2012

Love this, Lynn :) Of course, I still have no idea how to help my son make sense of my mom's death. The closest we've gotten to talking about it was when Alex was in the ER a few months ago and whenever anyone wheeled an older person by on a stretcher, Alex would yell "Mom Mom DIED!" really loudly and then laugh at the mortified look on the nurse's face. I guess that's a start at least...

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Lynn Hudoba

10:08 am on Tuesday, February 21, 2012

I love our kids. How can anyone fail to see their charms? :P

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Lynn Hudoba

10:09 am on Tuesday, February 21, 2012

Also? This is why I won't be having the birds and the bees talk anytime soon.

Holly Olmsted-Hickey

11:48 am on Tuesday, February 21, 2012

Hearing this loud and clear. Among other wonderful qualities, my guy has the gifts of obsessiveness and phenomenal memory and is still trying to find clarity and understanding in his great-grandmother's passing from....five years ago. When my mother went into the hospital for an illiness during a visit a couple years ago, we were on constant "Death Watch" with daily phone calls from my mom's hospital room assuring that she was indeed alive and kicking and coming home. Can I tell you how much I am looking forward to her knee replacement this year? Sigh.

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Lynn Hudoba

3:32 pm on Wednesday, February 22, 2012

Maybe she could take an extended vacation instead :)

Jen

8:46 am on Thursday, February 23, 2012

Um, I might be chicken sh*t wen it comes to death. Remember Knut? That German polar bear? Yeah, K was obsessed with him. We even saw him last time we went to Berlin. Then he died. And I totally didn't tell her. He died like, what, 2 yrs ago? I finally told her a few weeks back b/c we were talking about going overseas this summer, and she asked if we would see Knut again (which, again chicken sh*t, I was about to tell her YES and just point out some random polar bear) when she said, "unless he's dead". Randomly. Then what was I to do? I kinda felt bad, and told her he died. It was not a happy time. She gets death means someone/animal goes away forever. We've had enough beta fish die that she kinda gets the idea. She does, however, think that b/c I am 34 I am knocking on heaven's door and pretty much worries I am about to die. It is heartbreaking. We aren't religious, so I can't dangle a fun-filled heaven in front of her, either. So, yeah, I avoid it. Thankfully, we haven't had anyone close to her die yet. It's easy to hide the death of a polar bear in another country. Not so much a family member...

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Lynn Hudoba

9:25 am on Thursday, February 23, 2012

The thing I most take from this comment is...what are you doing to your poor beta fish??

Jen

10:14 am on Thursday, February 23, 2012

It's been over the course of 4 years, so that's not too bad, right? One the cat got b/c K took the top off the tank, so easy access with a paw. One died b/c he was overfed, the others of natural causes? I don't know...ha. We are death to fish. Thankfully every other living thing in the house is still living.

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Jen

10:15 am on Thursday, February 23, 2012

Also, K only knows of 2 fish deaths. One she found herself, and the other I didn't get to PetSmart in time before she noticed the empty tank. The other 2 are my little secret. Once I had to even get a totally different colored Beta, which she noticed, but believed me that the thing must have just changed colors. Yeah.

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Lynn Hudoba

11:14 am on Thursday, February 23, 2012

I have a goldfish that I would really like to get rid of...I'm sending it your way.

Jean Carroll-Autism Page

3:59 pm on Monday, February 27, 2012

Am I bad that I laughed my arse off...xxx

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Jim W

8:41 am on Thursday, March 15, 2012

feeling very en-fraughtened by this.

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joijfejg8934j8934

4:10 am on Wednesday, May 9, 2012

I am so glad I never have to worry about reproducing. Having to raise kids, let alone special needs ones scares the shit out of me, especially after reading articles like this.

My biggest fear if I had an autistic kid would be he/she becoming the next Chris-chan.

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